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hemophilianewstoday
17 小时
Letting go of the past is hard, but I look forward to my sons’ futures
Now that his sons are grown, columnist Joe MacDonald struggles with letting go of the past and moving on from his role as a caregiver.
hemophilianewstoday
2 天
Hemophilia gene therapy Beqvez reduces bleeds in Phase 3 trial
Beqvez (fidanacogene elaparvovec) led to about three times fewer bleeding episodes than preventive treatment with regular ...
hemophilianewstoday
1 天
The spectrums of color and pain for a young man with hemophilia
MacDonald talks with her 18-year-old son, Caeleb, about how chronic pain affects his life and perception of color.
hemophilianewstoday
6 天
Immunotherapy helps suppress inhibitors in acquired hemophilia A
Data showed 85% of people diagnosed with acquired hemophilia A had a positive response to immunotherapy combined with ...
hemophilianewstoday
9 天
Bleeds in acquired hemophilia A safely prevented with Hemlibra
Treatment with Hemlibra also led to shorter hospital stays for acquired hemophilia A patients and contributed to lower ...
hemophilianewstoday
6 天
How hurricanes and hemophilia teach us the power of community
We must weather the biggest of storms together and harness the power of community when life is hard, columnist Jennifer Lynne writes.
hemophilianewstoday
3 天
Rejection is a risk worth taking, even in the context of hemophilia
Some risks are worth taking, even in a life with hemophilia, columnist Alliah Czarielle has found. In fact, they can be good for us.
hemophilianewstoday
13 天
Prophylaxis able to reduce bleeds in older people with severe hemophilia
Prophylaxis in patients ages 50 and older with severe hemophilia A and B was effective at reducing bleeds and improving ...
hemophilianewstoday
10 天
How my advocacy fulfills my college’s call to ‘Serve the People’
Columnist Alliah Czarielle sees the alignment in how she's living her life and her university's advice to "Serve the People." ...
hemophilianewstoday
8 天
The hidden grief I experience as a mother of sons with hemophilia
Grief is often associated with a tragic event, such as the death of a young person, loss and trauma after a mass school shooting, or lives taken by a drunk driver. Grief is also a common and too-often ...
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